Health Outcome Questionnaires - Parkinson's Questionnaire PDQ39

(Isis - 3037)

The Oxford Health Outcomes Questionnaires have been developed at the University of Oxford’s Health Services Research Unit by senior academics and clinicians including Prof Crispin Jenkinson and Prof Ray Fitzpatrick.

The flagship questionnaire, PDQ-39, is the most widely used Parkinson's Disease specific measure of health status.  It was developed on the basis of interviews with people diagnosed with the disease and contains thirty-nine questions, covering eight aspects of quality of life. It can be used to monitor changes that may occur during clinical trials of therapeutics for Parkinson’s disease.

Licensees of the PDQ-39 and PDQ-8 (the short-form of the questionnaire) include pharmaceutical companies running clinical trials and Contract Research Organisations.

The questionnaire has been widely validated and translated into over fifty languages.

Isis Innovation is responsible for licensing the questionnaire for commercial use, and has worked with 17 pharmaceutical companies to provide them with the questionnaire for clinical trials.

Isis also works with academics who have developed Knee, Hip and Shoulder scores to improve the measurement of outcomes, particularly following surgery, as well as the likelihood of obtaining measurable results. They have been well-validated for use in clinical trials.

University of Oxford Health Services Research Unit

Lead Researchers: Professor Crispin Jenkinson, Professor Ray Fitzpatrick

University Department: Public Health

Date of Disclosure to Isis: 2006