The Isis Outcomes Team
PRO Development Team
The design, development, testing and validation of the Oxford PROs has been led by a world-class team of health services and PRO professionals, clinicians and surgical consultants. The clinicians that work with our PRO developers enjoy international reputations in their area of expertise. This group’s considerable expertise in orthopaedic surgery, neurological disorders, women’s and children’s health has led to the development of several internationally-recognized PROs.
Professor Crispin Jenkinson
Crispin Jenkinson is Professor of Health Services Research and Director of the Health Services Research Unit in the Department of Public Health and a Senior Research Fellow at Harris Manchester College, University of Oxford. He graduated from Bedford College, University of London, before coming to Oxford where he gained an M.Sc. in psychology and completed a D.Phil. researching the psychological impact of long-term illness.
Crispin has written and edited a number of books as well as having published over 130 peer reviewed papers. His research interests include health status measurement, the evaluation of patient experiences of medical care, and methodology. This work has led to the development of several internationally recognized PRO measures including the Parkinson’s Disease Questionnaire (PDQ), Amyotrophic Lateral Sclerosis Questionnaire (ALSAQ), and the Endometriosis Health Profile (EHP).
Professor Ray Fitzpatrick
Ray Fitzpatrick is Professor of Public Health and Primary Care in the Division of Public Health and Primary Health Care and a Fellow of Nuffield College, University of Oxford. He is chair of an NHS R&D Academic Unit in Oxford and directs a programme for the UK Government Department of Health which provides analysis, reviews and advice to the NHS on PRO measures.
Ray's research focuses on evaluation of health services and treatments, particularly interventions for chronic diseases. For example, he collaborates with colleagues in Nuffield Orthopaedic Centre in a number of trials of alternative forms of surgery and is currently completing a study of health service experiences and outcomes of individuals with long term neurological conditions.
Ray is part of the world-class team that developed the Oxford orthopaedic patient-reported outcome measures, namely the Oxford Hip, Knee, Shoulder and Elbow scores, and the Oxford shoulder instability score. Ray is also a co-developer of the Oxford Parkinson’s Disease Questionnaire – the PDQ. Ray was elected to Fellow of the Academy of Medical Sciences in 2008.
Dr Jill Dawson
Jill Dawson is a Senior Research Scientist in the Health Services Research Unit at the University of Oxford and a Visiting Professor at Oxford Brookes University. Jill initially had a nursing career, before completing an MA in Human Sciences (University of Oxford) followed by an MSc in Medical Sociology and Social Research Methods as applied to medicine (London University).
Jill's early research focused on prospective surveys of use of health care services in relation to HIV infection. This culminated in a doctorate in 1993. Since 1993, Jill’s research interests have focused on health status measurement and methodology – particularly in the context of orthopaedic outcomes. This work has included the development of a number of PRO measures, namely the Oxford Hip, Knee, Shoulder and Elbow scores; and the Oxford shoulder instability score. This work continues to involve collaborations with a number of consultant surgeons and other researchers at the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences.
Dr Chris Morris
Chris Morris is a Senior Research Fellow in Child Health at Peninsula Medical School in Exeter. He runs the Cerebra Research Unit which operates a wide-ranging programme of childhood disability research with the aim of improving the health and wellbeing of disabled children. Chris is an Honorary Research Fellow in the Department of Public Health, a Research Fellow of Wolfson College, Oxford and Honorary Principal Orthotist at the Nuffield Orthopaedic Centre, University of Oxford.
After working clinically as an orthotist for more than 10 years, Chris began his academic career in Oxford by completing the part-time MSc in Evidence based Health Care in 2001 and was awarded a DPhil in 2006. Chris’ postdoctoral research, funded by the MRC, involved the development of the Oxford Ankle Foot Questionnaire for Children (OxAFQ-C).
Chris's current research includes addressing measurement issues in childhood disability, qualitative research with children and the appraisal and use of PRO measures. Chris is a member of the Editorial Board of Mac Keith Press and an Associate Editor for Developmental Medicine and Child Neurology.
Dr Georgina Jones
Georgina Jones is a senior lecturer in social science at the University of Sheffield. Previously she worked for 3 years as a post-graduate research assistant in the Nuffield Department of Obstetrics and Gynaecology and the Health Services Research Unit at the University of Oxford. Here she undertook a D.Phil. in the measurement of health-related quality of life in women with endometriosis and developed a new psychometric tool, the Endometriosis Health Profile PRO (EHP), to measure the impact this condition has upon the well-being of women with the condition.
Since then Georgina's research interests have extended to include quality of life measurement and instrument development and validation for women with other benign (in particular, polycystic ovary syndrome and pelvic floor disorders) and malignant gynaecological conditions.
Dr David Morley
David Morley currently holds posts in the Department of Public Health, University of Oxford and the Open University where he is an Associate Lecturer. He graduated from the University of Buckingham prior to gaining an MSc and PhD from the Institute of Neurology, University College London. His doctoral research focused on the impact of neurological illness on the offspring of affected individuals.
David has significant research interests in outcomes measurement and has developed and contributed to a number of measures, including the Parental Illness Impact Scale (PIIS-R) and the Gilles de la Tourette Syndrome Quality of Life Scale (GTS-QOL). He has also recently undertaken a preliminary validation of the Self Report Barthel Index (SRBI) in people with Parkinson’s Disease.
The scientific team has been supported by several world-leading clinicians in the design, development, testing and validation of the Oxford PROs, including:
Professor Andrew Carr
Professor Carr is the Nuffield Professor of Orthopaedic Surgery and head of the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences at the University of Oxford UK.
In the early 1990's Andrew established a shoulder surgery unit in Oxford and introduced joint replacement and minimally invasive shoulder surgery. He provides a surgical service for the NHS in shoulder joint replacement and in surgery for muscle and tendon disorders.
Andrew is the founder director of the NIHR musculoskeletal Biomedical Research Unit whose remit is to translate new scientific discoveries into effective treatments.
Andrew's research interests are in the genetic basis of osteoarthritis and degenerative tendon conditions of the shoulder. He also researches more effective methods of assessing outcome following orthopaedic surgery and played a crucial role in supporting the design, testing and validation of the Oxford orthopaedic PROs.
Andrew was awarded the Robert Jones Gold Medal by the British Orthopaedic Association in 2001. In 2002 he founded the Botnar Research Centre, the Oxford University Institute of Musculoskeletal Sciences, which houses 100 scientists. He is Deputy Editor of the Journal of Bone and Joint Surgery and a trustee of the charity Arthritis Research UK. He was elected a fellow of the Academy of Medical Sciences in 2009 and is President elect of the British Elbow and Shoulder Surgery Society.
Mr Stephen Kennedy
Stephen Kennedy, MA (Oxon), MD, MRCOG, is Head of Department and Professor of Reproductive Medicine in the Nuffield Department of Obstetrics and Gynaecology at the University of Oxford, and a Fellow of Green Templeton College, Oxford. He is also an Honorary Consultant Gynaecologist at The Women's Centre, John Radcliffe Hospital, Oxford.
Stephen has developed an international reputation in endometriosis. His interests in the disorder include genetic epidemiology, health services research, development of new diagnostic tests, and clinical drug trials, and he has published widely on the subject. He has a role as a medical advisor to areas of the pharmaceutical industry and is actively involved in preparing national and international guidelines on the investigation and treatment of endometriosis, whilst also supporting patient self-help groups in both the UK and US.Stephen is a trustee of the World Endometriosis Research Foundation, and he has acted as an advisor to a number of pharmaceutical companies.
Stephen provided his expertise in the design, testing and validation of the Oxford Endometriosis Health Profile PRO (EHP-30), the first disease specific, patient generated quality of life PRO in endometriosis.
Professor David Thompson
Professor Thompson has extensive clinical and research experience in the field of cardiac care and rehabilitation. He has published widely, including over 400 papers and a dozen books. He has been awarded significant research grants and has served on numerous expert committees of prestigious bodies, including the Department of Health, the Medical Research Council, the British Heart Foundation and the European Society of Cardiology. He has served as an editor of five journals and is currently an editor of the European Journal of Cardiovascular Nursing and the International Journal of Nursing Practice. He also serves on the editorial boards of numerous nursing and medical journals.
Professor Thompson has received a number of honours in recognition of his contributions to the art and science of nursing and cardiology, including being elected a Fellow of the Royal College of Nursing, in 1992, a Fellow of the European Society of Cardiology, in 1998 and a Fellow of the American Academy of Nursing, in 2008.
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Commercial Team
Isis Outcomes, is an activity within Technology Transfer, a part of Isis Innovation Limited, the Technology Transfer company of the University of Oxford, is the owner of the copyright in the Oxford PROs. Isis Outcomes is dedicated to the development, management, support and dissemination of PROs.
Dr David Churchman
David is an Associate of the Health Services Research Unit (HSRU) at the University of Oxford. David joined Isis in April 2004 as a Project Manager in the Technology Transfer group. In 2007, after several successful years in technology commercialisation which included securing investment for two spin-out companies, David took on a new role leading the development of the PRO activity within Isis. This activity was rebranded in April 2010 as Isis Outcomes.
David has been instrumental in growing the Isis Outcomes portfolio and in building the value of individual PROs including licensing of linguistically validated translations and creation of supporting materials (e.g. user manuals). Drawing on his considerable commercial experience in sales and marketing roles, David has been successful in improving awareness and increasing demand for the Oxford PROs through targeted promotional campaigns. He has also focused on achieving excellence in customer service and considerable effort has been spent streamlining the process by which customers can procure PROs and relevant support materials.
David obtained a PhD and MSc from the University of Surrey. David’s commercial experience, which has been gained in large global organisations through to small start-up companies, includes international marketing and sales roles, as well as product development for high-tech scientific products. David is an active member of the International Society for Pharmacoeconomics and Outcome Research (ISPOR) and the American Society of Reproductive Medicine (ASRM).
Ms Zuzana Weberova
Zuzana joined Isis in August 2011 and supports Isis Outcomes by providing licenses to the academic community. Zuzana is also responsible for maintaining the Isis Outcomes library, a growing resource which currently includes over 120 linguistically validated translations of the Oxford PROs as well as support materials such as user manuals and user guides which accompany the PROs.
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Associate Network
Isis Outcomes has a network of external consultants and service providers that we work with to deliver certain activities for our customers. These activities include translation and linguistic validation as well as development of e-PRO solutions. All of the consultants and service providers who work with Isis Outcomes are well-known and highly regarded organisations familiar to the PRO community:
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